freeflygoddess 0 #1 February 17, 2005 Hi ya'll. My son Derek was born on November 8th and he was happy and healthy, but had a strangely shapped head. The nurse who was releasing us from the hospital on that day said it was just from the birth canal and it would change...well this is my third baby and I barely had to push him out and plus we knew much better because Todd has the same condition, only he didn't know what it was called until we saw it on the Discovery Channel when I was pregnant. Any ways, it is called Craniosynostosis. Basically he was born without a soft spot. So we took him to see Dr. Cohen (plastic surgeon) and Dr. Meltzer (neuro surgeon) at Children's Hospital in San Diego, CA. and we have begun treatment. He had surgery on November 3rd and we were in the hospital for 3 days. He did well I am attaching the before photos here and the photos I took after surgery in the hospital. I will have to add the rest on another post... Quote Share this post Link to post Share on other sites
freeflygoddess 0 #2 February 17, 2005 Here are pics after the bandages were off Quote Share this post Link to post Share on other sites
Girlfalldown 0 #3 February 17, 2005 Awe poor lil guy! It's always tough seeing such a young one go through surgery. Glad to hear the surgery went well. Wow he has some beautiful big eyes in that third picture! -------------- (Do not, I repeat DO NOT, take my posts seriously.) Quote Share this post Link to post Share on other sites
skymama 35 #4 February 17, 2005 I'm glad he's doing ok. She is Da Man, and you better not mess with Da Man, because she will lay some keepdown on you faster than, well, really fast. ~Billvon Quote Share this post Link to post Share on other sites
freeflygoddess 0 #5 February 17, 2005 He just got his helmet to help reshape his head after the removal of part of his skull, which is what they did during surgery. Quote Share this post Link to post Share on other sites
jumper03 0 #6 February 17, 2005 QuoteHe just got his helmet to help reshape his head after the removal of part of his skull, which is what they did during surgery. can you put some freefly stickers on his helmet?Scars remind us that the past is real Quote Share this post Link to post Share on other sites
freeflygoddess 0 #7 February 17, 2005 He is doing great now...actually I am nursing as I type...Any ways we are going to decorate his helmet to look like a Bonehead with two cameras. We went to Perris yesterday after getting it and got some stikers from the fly boys, but we need some more if anyone has some small ones they can send us tht would b great Quote Share this post Link to post Share on other sites
freeflygoddess 0 #8 February 17, 2005 yep...see my post above, we have two small head down guys as well... edit oh yeah and we can paint it too but we aren't the greatest at painting... Quote Share this post Link to post Share on other sites
OrangeJumper 0 #9 February 17, 2005 QuoteHe is doing great now...actually I am nursing as I type...Any ways we are going to decorate his helmet to look like a Bonehead with two cameras. We went to Perris yesterday after getting it and got some stikers from the fly boys, but we need some more if anyone has some small ones they can send us tht would b great That's awesome! It's good to hear that he is doing well....very cute btw. The Original Cabana Boy! Quote Share this post Link to post Share on other sites
Rebecca 0 #10 February 17, 2005 QuoteHe just got his helmet to help reshape his head after the removal of part of his skull, which is what they did during surgery. So glad all is well - he looks like a happy little tyke - obviously much MUCH love in his life! Yay! In the helmet, he also looks like an extra from the cyberworld in Tron! I can see it lighting up with blue LED... you've got to ask yourself one question: 'Do I feel loquacious?' -- well do you, punk? Quote Share this post Link to post Share on other sites
freeflygoddess 0 #11 February 17, 2005 Thanks...he does look awefully cute... Any ways, let me finish my story now that he is not nursing and I can type again... The surgery was done to remove the top portion of his skull and then they cut wedges around the sides and the back. The helmet will be worn for 3 to 6 months and I will have to drive to SD twice a week during that time to get the helmet adjusted and also to see the surgeons and makes sure everything is going great still. They said he may need to have a second surgery, they haven't had to yet, but there is always a first for everything. Afterwards he will go once a month for the next five years to check on things and after five years just once a year, so for right now I can not work which really hurts in SoCal...too expensive for one income families. Any ways, so we have put jumping aside for now, because Derek is the most important thing, along with my other two Zain and Megan...but we do plan on coming back when we either win the lotto or his treaments are over and I can get back to work... Quote Share this post Link to post Share on other sites
hooked 0 #12 February 17, 2005 He is just a little cutie! I'm glad he is doing so well. My granddaughter had to wear a 'helmet' similar to his because of a misshapen head. We decorated it all over with 'girlie' type stickers. She definitely got some strange looks from the general public because they didn't know why she had to wear such a helmet! We met a few people that knew because their child had also had one. J -------------------------------------- Sometimes we're just being Humans.....But we're always Human Beings. Quote Share this post Link to post Share on other sites
freeflygoddess 0 #13 February 17, 2005 Yep I am sure I will get those looks too but I am not one that cares what others think, I mean I made my sn just to see how many would get pissed off...lol...any ways, I figured that decorating it like a true FreeFly helmet would get the wuffos puzziling even more! I also thought about putting "Boob Master" on it because he is such a boob loving baby..Breastfeeding my other two were never this easy, maybe I am just a third time pro or he is just a true FreeFly Boy....I also thought about writhing "low hook turns bite" or "Chow Baby Chow" or "pull high hook low" and then carry him around Perris on the weekend with him in my baby harness which make him look just like a little tandem passanger and wear my rig around and stuff, for all the cargo riders going up....so they don't chicken out... Quote Share this post Link to post Share on other sites
Bouda 0 #14 February 17, 2005 he is still cute as a button and i am happy to hear the little guy is doing ok Look what i made at work today mom!! Put it on the fridge http://www.bouda.moonfruit.com Quote Share this post Link to post Share on other sites
adamUK 3 #15 February 17, 2005 Awww... what a sweetheart he is. I am glad he is doing well. Good vibes to you and the little fella. Quote Share this post Link to post Share on other sites hooked 0 #16 February 17, 2005 QuoteYep I am sure I will get those looks too but I am not one that cares what others think, I mean I made my sn just to see how many would get pissed off...lol...any ways, I figured that decorating it like a true FreeFly helmet would get the wuffos puzziling even more! I also thought about putting "Boob Master" on it because he is such a boob loving baby..Breastfeeding my other two were never this easy, maybe I am just a third time pro or he is just a true FreeFly Boy....I also thought about writhing "low hook turns bite" or "Chow Baby Chow" or "pull high hook low" and then carry him around Perris on the weekend with him in my baby harness which make him look just like a little tandem passanger and wear my rig around and stuff, for all the cargo riders going up....so they don't chicken out... Exactly....who cares what others think? Your ideas for his helmet sound awesome!!! J -------------------------------------- Sometimes we're just being Humans.....But we're always Human Beings. Quote Share this post Link to post Share on other sites dropdeded 0 #17 February 17, 2005 I've recently transported some little ones, those are the tough ones. 4 month old yesterday and took a 32 day old to LA a few days ago. Its tough to drop em off and never know what happens after that. I'd appreciate an update every so often. Hope all goes well with yoursthanks dropdeded------------------------------------------ The Dude Abides. - Quote Share this post Link to post Share on other sites lewmonst 0 #18 February 17, 2005 Wow, I just put two and two together... We met yesterday at Perris and I didn't know you were freeflygoddess on here... Anyway, I told you yesterday, but just for interest sake will share with everyone else. I also had craniosynostosis. Mine was of the metopic suture. Surgery for it back in the 70's consisted of cutting me open from ear to ear, (I was just an infant), pulling my forehead skin down and removing bone from my forehead. They wrapped me up like a mummy, no cool helmet. My surgery was fine, as I'm fine today, not the best aesthetically as I still have bumps on my forehead. I look like that star trek character. Depending on the light, shadows make it look like dirt or bruises still. It's just cosmetic, but I do wish I could fix it. Most of the time people don't notice, or maybe they do and ignore it, I don't know. I just like to say my brain is so big they had to make more room... Seriously though, it's not that uncommon. Lots of google info on it. nice meeting you. See you in Perris when you're ready to jump again. peace lewhttp://www.exitshot.com Quote Share this post Link to post Share on other sites freebird 0 #19 February 18, 2005 poor little guy. My son (6 MONTHS OLD.) has to have surgery too in the next few weeks.His circumcision was not done RIGHT when he was born. Your baby looks great and so cute. Quote Share this post Link to post Share on other sites freeflygoddess 0 #20 February 18, 2005 Nice! I didn't know it was you either...It was good to put a face to a name. I know Derek is going to be great, he is such a happy baby. I just hope we can get his helmet to do his cute smile justice. You are really lucky that they knew when you were born. Todd'd parents didn't know, but I have heard that it can cause some serious problems. You look great! Todd is thinking about getting it as well, but being older it is a much harder procedure, we shall see, but Derek first. Quote Share this post Link to post Share on other sites freeflygoddess 0 #21 February 18, 2005 Awe he is so cute. I hope all is well with him. He looks like he is going to get all the ladies when he is older. Quote Share this post Link to post Share on other sites gmanpilot 0 #22 February 18, 2005 Two things: 1. He's a handsome little fella. 2. You're a kick-ass Mom!_________________________________________ -There's always free cheese in a mouse trap. Quote Share this post Link to post Share on other sites freeflygoddess 0 #23 February 18, 2005 thanks! That makes me wish I could get a sticker made for his helmet that says"moms kick ass!" instead of "Girls Kick Ass" but I really think that the wuffos wouldn't understand that at all and I would def get some looks then Quote Share this post Link to post Share on other sites hooked 0 #24 February 18, 2005 Ha! Go for the 'looks' and make your own stickers on the computer that say "Mom's Kick Ass"!!! The 'looks' are priceless!J -------------------------------------- Sometimes we're just being Humans.....But we're always Human Beings. Quote Share this post Link to post Share on other sites Join the conversation You can post now and register later. If you have an account, sign in now to post with your account. Note: Your post will require moderator approval before it will be visible. Reply to this topic... × Pasted as rich text. Paste as plain text instead Only 75 emoji are allowed. × Your link has been automatically embedded. 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hooked 0 #16 February 17, 2005 QuoteYep I am sure I will get those looks too but I am not one that cares what others think, I mean I made my sn just to see how many would get pissed off...lol...any ways, I figured that decorating it like a true FreeFly helmet would get the wuffos puzziling even more! I also thought about putting "Boob Master" on it because he is such a boob loving baby..Breastfeeding my other two were never this easy, maybe I am just a third time pro or he is just a true FreeFly Boy....I also thought about writhing "low hook turns bite" or "Chow Baby Chow" or "pull high hook low" and then carry him around Perris on the weekend with him in my baby harness which make him look just like a little tandem passanger and wear my rig around and stuff, for all the cargo riders going up....so they don't chicken out... Exactly....who cares what others think? Your ideas for his helmet sound awesome!!! J -------------------------------------- Sometimes we're just being Humans.....But we're always Human Beings. Quote Share this post Link to post Share on other sites
dropdeded 0 #17 February 17, 2005 I've recently transported some little ones, those are the tough ones. 4 month old yesterday and took a 32 day old to LA a few days ago. Its tough to drop em off and never know what happens after that. I'd appreciate an update every so often. Hope all goes well with yoursthanks dropdeded------------------------------------------ The Dude Abides. - Quote Share this post Link to post Share on other sites
lewmonst 0 #18 February 17, 2005 Wow, I just put two and two together... We met yesterday at Perris and I didn't know you were freeflygoddess on here... Anyway, I told you yesterday, but just for interest sake will share with everyone else. I also had craniosynostosis. Mine was of the metopic suture. Surgery for it back in the 70's consisted of cutting me open from ear to ear, (I was just an infant), pulling my forehead skin down and removing bone from my forehead. They wrapped me up like a mummy, no cool helmet. My surgery was fine, as I'm fine today, not the best aesthetically as I still have bumps on my forehead. I look like that star trek character. Depending on the light, shadows make it look like dirt or bruises still. It's just cosmetic, but I do wish I could fix it. Most of the time people don't notice, or maybe they do and ignore it, I don't know. I just like to say my brain is so big they had to make more room... Seriously though, it's not that uncommon. Lots of google info on it. nice meeting you. See you in Perris when you're ready to jump again. peace lewhttp://www.exitshot.com Quote Share this post Link to post Share on other sites
freebird 0 #19 February 18, 2005 poor little guy. My son (6 MONTHS OLD.) has to have surgery too in the next few weeks.His circumcision was not done RIGHT when he was born. Your baby looks great and so cute. Quote Share this post Link to post Share on other sites
freeflygoddess 0 #20 February 18, 2005 Nice! I didn't know it was you either...It was good to put a face to a name. I know Derek is going to be great, he is such a happy baby. I just hope we can get his helmet to do his cute smile justice. You are really lucky that they knew when you were born. Todd'd parents didn't know, but I have heard that it can cause some serious problems. You look great! Todd is thinking about getting it as well, but being older it is a much harder procedure, we shall see, but Derek first. Quote Share this post Link to post Share on other sites
freeflygoddess 0 #21 February 18, 2005 Awe he is so cute. I hope all is well with him. He looks like he is going to get all the ladies when he is older. Quote Share this post Link to post Share on other sites
gmanpilot 0 #22 February 18, 2005 Two things: 1. He's a handsome little fella. 2. You're a kick-ass Mom!_________________________________________ -There's always free cheese in a mouse trap. Quote Share this post Link to post Share on other sites
freeflygoddess 0 #23 February 18, 2005 thanks! That makes me wish I could get a sticker made for his helmet that says"moms kick ass!" instead of "Girls Kick Ass" but I really think that the wuffos wouldn't understand that at all and I would def get some looks then Quote Share this post Link to post Share on other sites
hooked 0 #24 February 18, 2005 Ha! Go for the 'looks' and make your own stickers on the computer that say "Mom's Kick Ass"!!! The 'looks' are priceless!J -------------------------------------- Sometimes we're just being Humans.....But we're always Human Beings. Quote Share this post Link to post Share on other sites
