ACMESkydiver 0 #1 December 18, 2009 I totally get those things that are common and deadly or devastating...breast cancer awareness makes sense. Autism awareness makes sense (check it out; we are now at 1 of every 58 boys will develop autism )... -but what I don't get is the more obscure and rare diseases. I was on a message board regarding some health issues, and everywhere there are products to buy for 'Ehlers-Danlos Syndrome -Vascular' awareness. It's not common; some estimates place it at 1:250,000. It's deadly, but there isn't anything you can do about it... There are HUNDREDS of diseases out there. Do we really have to be 'aware' of all of them? How much information are we supposed to hold in our lil' heads anyway? I would hope that medical professionals would pick up a few...though I am the LAST person that would ever condone relying solely upon a doctor. When does it cross the line from 'awareness' to 'paranoia and hypochondria'? Anyone else thinking WTF every time they see a new bumper sticker or T-shirt that reads 'Dwarf Scandinavian Hypertension DeLowe's Syndrome Awareness'?? ~Jaye Do not believe that possibly you can escape the reward of your action. Quote Share this post Link to post Share on other sites
CSpenceFLY 1 #2 December 18, 2009 My guess would be it depends whether or not you have been touched by a disease in one way or another. I'm sure there are people out there that would say "Fuck Autism,I don't know anyone who has it". Quote Share this post Link to post Share on other sites
skyrider 0 #3 December 18, 2009 I wasn't aware of that! Quote Share this post Link to post Share on other sites
guppie01 0 #4 December 18, 2009 Quote When does it cross the line from 'awareness' to 'paranoia and hypochondria'? My Mother is the worst when it comes to mass media hysteria... I've learned to never discuss anything wrong with me b/c I'm sure to have this disease, or that disease, and I HAVE to promise to see a Dr. immediately. Oh, and don't get me started with the stupid freakin swine flu - PEOPLE if I sneeze it's allergies - not the fucking swine flu!!!! OI g"Let's do something romantic this Saturday... how bout we bust out the restraints?" Raddest Ho this side of Jersey #1 - MISS YOU OMG, is she okay? Quote Share this post Link to post Share on other sites
Bolas 5 #5 December 18, 2009 http://www.cracked.com/article_14990_what-monkeysphere.html This sorta explains it.Stupidity if left untreated is self-correcting If ya can't be good, look good, if that fails, make 'em laugh. Quote Share this post Link to post Share on other sites
ACMESkydiver 0 #6 December 18, 2009 Quote http://www.cracked.com/article_14990_what-monkeysphere.html This sorta explains it. Ohhh....I get it! ~Jaye Do not believe that possibly you can escape the reward of your action. Quote Share this post Link to post Share on other sites
ACMESkydiver 0 #7 December 18, 2009 Quote My guess would be it depends whether or not you have been touched by a disease in one way or another. I'm sure there are people out there that would say "Fuck Autism,I don't know anyone who has it". Yeah I guess so. I didn't know jack about it until my boys were diagnosed. I figure if it's for safety, like knowing the signs of heart attack or stroke, well that makes sense. There is a higher possibility that we would have an encounter with someone having a heart attack or a stroke. -My hubby and I each have, and knowing the signs was a good thing. I don't see the point in buying T-shirts and freaking key chains and tattoos to help raise awareness for something that 99.99% of the population will never see anyway. They'd have a higher chance of hitting the state lottery than ever having or meeting someone with this exact, precise, specific gentic mutation. I think everybody has some kind of genetic f*ck-up running around in their ol' DNA somewhere anyway. Seems that way on any chat group for some rare, unheard of illness. Have to 'raise awareness' for Dysmorphic Eyelash Disorder. Sheesh. ~Jaye Do not believe that possibly you can escape the reward of your action. Quote Share this post Link to post Share on other sites
ACMESkydiver 0 #8 December 18, 2009 Quote Oh, and don't get me started with the stupid freakin swine flu - PEOPLE if I sneeze it's allergies - not the fucking swine flu!!!! OI g That's funny! We had entire schools closed down up here because there was 1 confirmed case of swine flu...ok, give the kid a week off, and keep school in session. I guess the hardest hit have been the colleges -makes sense. There's more close contact going on in college. ~Jaye Do not believe that possibly you can escape the reward of your action. Quote Share this post Link to post Share on other sites
BikerBabe 0 #9 December 18, 2009 Quotehttp://www.cracked.com/article_14990_what-monkeysphere.html This sorta explains it. That actually makes a hell of a lot of sense.Never meddle in the affairs of dragons, for you are crunchy and taste good with ketchup! Quote Share this post Link to post Share on other sites
Bolas 5 #10 December 18, 2009 Quote Seems that way on any chat group for some rare, unheard of illness. Have to 'raise awareness' for Dysmorphic Eyelash Disorder. Sheesh. Or Post Traumatic Didn't Make The Lakers Syndrome Stupidity if left untreated is self-correcting If ya can't be good, look good, if that fails, make 'em laugh. Quote Share this post Link to post Share on other sites
ltdiver 3 #11 December 19, 2009 Quote'Ehlers-Danlos Syndrome' I've actually known 2 ladies with this disease. One lost her life to it (a skydiver) and one has to guard her joints because they pop out of joint if she's not extremely careful. Orphan diseases are just that . . . people don't believe they need attention because only a few members of the population have it. That's sad. Just because only a few are afflicted doesn't mean the medical field doesn't need to pay attention and try and find a cure. SMA comes to mind (Spinal Muscular Atrophy). Nobody wants to lose a child to the inability to breathe. Losing a loved one, from something that could be cured if research is done, is downright cruel. ltdiver Don't tell me the sky's the limit when there are footprints on the moon Quote Share this post Link to post Share on other sites
wayneflorida 0 #12 December 19, 2009 Quote Quote http://www.cracked.com/article_14990_what-monkeysphere.html This sorta explains it. That actually makes a hell of a lot of sense. >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Where is the cliff notes' version? Quote Share this post Link to post Share on other sites