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chopchop

Living with epillepsy

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OK.. so plaything is not going to be a skydiver anytime soon and here is why. A couple of years ago, she took too much of a drug called Welbutrin which caused a seizure. She had them regularly until she stopped taking it and they pretty much went away. After the coma incident a few months ago, she has been having them pretty regularly, sometimes not breathing, rapid eye movement, definitely nobody home. I have been around for most of them and cared for her as she regained consciousness and normalcy. Lately, though, they have gotten worse (one Sunday evening and again yesterday evening) and during her recovery, she has had symptoms such as temporary blindness and last night, she couldn't talk for about 2 hours.. Everything else was normal.. we ate dinner, had sex, watched a movie. She could communicate and was sharp as ever but couldn't make herself form words. She does not want to go to a doctor because she is afraid of losing her driving priviledges. We are just looking for others that either have seizures or are living with someone that does to share information with. She does get a short warning before a seizure comes on which gives her enough time to pull her car over, get out of the hot tub or get to a safe place which is why it seems okay for her to drive right now. This obviously is a serious thread. :|
chopchop
gotta go... Plaything needs a spanking..

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She does get a short warning before a seizure comes on which gives her enough time to pull her car over, get out of the hot tub or get to a safe place which is why it seems okay for her to drive right now.



I know how important it is to be able to drive, especially in California.. but what would happen if she had one without the warning while driving?

Get her to the doctor - regardless and NOW. This isn't anything to screw around with. Only a doctor can tell her if it's epilepsy or some other possibly more dire neurological problem. Epilepsy can be controlled with meds, but she can't get the meds if she doesn't go to a doctor.

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Oh, and I would like to add, the loss of driving priveleges, if any, would only be temporary. And there are a number of medications that can control seizures. If she can get the medication and go an alotted period of time without a seizure, then her license will be reissued.

But on a fucked-up note, my friend has had TWO crashes while having seizures and STILL has not even had her license suspended. And BELIEVE ME, this is not a decision on the part of her doctor (b/c that's who ultimately decides, given that these were single-car accidents with no court visit) that i agree with IN ANY WAY. I feel she should take the initiative to take herself off the road until she gets this under control, but she does not see things my way. But that's something for Lani to consider as well. Does she really want to be driving her children around and jeopardize their lives if she has a seizure?

Kelly

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She does get a short warning before a seizure comes on which gives her enough time to pull her car over, get out of the hot tub or get to a safe place which is why it seems okay for her to drive right now.



I know how important it is to be able to drive, especially in California.. but what would happen if she had one without the warning while driving?

Get her to the doctor - regardless and NOW. This isn't anything to screw around with. Only a doctor can tell her if it's epilepsy or some other possibly more dire neurological problem. Epilepsy can be controlled with meds, but she can't get the meds if she doesn't go to a doctor.



true. My little brother had seizures for much of his adolecent life. Spent quite a few years on meds, but now hes all grown up and doenst have any related problems.

Good luck to you and her.
Goddam dirty hippies piss me off! ~GFD
"What do I get for closing your rig?" ~ me
"Anything you want." ~ female skydiver
Mohoso Rodriguez #865

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Roy, while I understand your desire to want to help her and respect her wishes, she DEFINITELY needs to get to the doctor. I worked with a woman who had very mild epileptic seizures - she would get a warning before each one, until the very last one that took her life. . .when she rolled her jeep off the mountain road she lived on. She never wanted to go to the doctor's and get help because of the same thing you are talking about.

Please, please, please encourage her to get help. . .
________________________________________
Take risks not to escape life… but to prevent life from escaping. ~ A bumper sticker at the DZ
FGF #6
Darcy

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What she experiences after the seizures is a common occurrence calls Todd's Paralysis.....The seizures can be easily controlled with medicine and most doctors take removing someone's ability to drive very seriously and use it as a last resort. Even if for some reason the doctor does feel the need to remove her driving privilege , she will most likely have them re-instated after the doctor feels he has the seizures under control and the medicine dose just right. In cases of seizures she is going to have to weigh out ....Can she live without driving for a relatively short time or can she live with the fact that she may cause an accident that takes a life and that is something she will have to live with for the rest of her life.
Tough decision to make.

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[replyDoes she really want to be driving her children around and jeopardize their lives if she has a seizure?



She is also jeopardizing the lives of anyone else on the road who may be hurt if she happens to have a seizure while driving. :| She needs to get to the doctor and get on some medication in order to better control her problem.

I have a friend with epilepsy who is a hard-core rockclimber. Once, he was leading a difficult multi-pitch route up a mountain side and had a bad seizure. I think that he tried to get to safety quickly, but he still hurt himself a little (banged his head or face?) when he went unconscious on the rocks. He awoke hanging in midair almost upside down from his harness. His poor partner/belayer couldn't get to him or get down from where he was belaying him, and, of course, his partner couldn't get down without my friend's belaying assistance either. They both ended up having to be rescued at dawn as my friend was weak, cold and in no condition to climb or belay anyone. (I believe that they were aid climbing...:o)

My friend still climbs, though...mostly leads sport routes, trads & boulders, too. I have climbed with him myself and with him as my only belayer, prior to knowing the story. I still trust that he would be able to belay me properly, though, as long as he is in control of his epilepsy. Certain things can and do aggravate certain illnesses, like epilepsy. My friend listens to his body and is sure to take precautions.

Lany doesn't have to give up all her desired activities (if she really is driven to do them). She needs to see what happens while she is consistently on meds first. Good luck.

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I'm really sorry to hear this...:(...Wish I could have met you guys in Orlando! Please get her help ASAP!! I know of too many people who are afraid of losing freedoms, and I can understand...I always hold freedom above all else. Tell Plaything to get better, but she needs to see a doctor, like skybytch said. IT IS VERY IMPORTANT!! Like others have said in this thread, there are tons of medications that are out that can help the symptoms and keep her close to seizure free. Please take care and I wish you two the best of luck!!! GET WELL!!![:/]:)

~R+R:)
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Fly the friendly skies...^_^...})ii({...^_~...

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Wow! Thanks everyone. It does seem that alcohol contributes although she did not drink yesterday and very little on Sunday. Also, they were consistently late at night and now all of a sudden, they are in the evening. The reason we have more sudden concern is that they came 24 hours apart at an unusual time and the after-effects were new to us. Also, they came on quicker (less warning) than previously. We have never considered the possibility of one without warning and will definitely be discussing this.
chopchop
gotta go... Plaything needs a spanking..

Lotsa Pictures

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She does get a short warning before a seizure comes on which gives her enough time to pull her car over, get out of the hot tub or get to a safe place which is why it seems okay for her to drive right now.



I know how important it is to be able to drive, especially in California.. but what would happen if she had one without the warning while driving?

Get her to the doctor - regardless and NOW. This isn't anything to screw around with. Only a doctor can tell her if it's epilepsy or some other possibly more dire neurological problem. Epilepsy can be controlled with meds, but she can't get the meds if she doesn't go to a doctor.




What she said!!!! I wouldn't delay getting her to see a doctor. Why take a chance of something more serious happening:S.

J


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Sometimes we're just being Humans.....But we're always Human Beings.

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I am very familiar with epilepsy - before I was diagnosed with my heart condition they thought I had epilepsy (this was 6 years ago)... so they put me on epileptic medication, which when taken by people who don't have epilepsy or in large amounts can cause seizures - ask any dr., this is true. (I haven't had one since I took myself off the medication more than 4 years ago and am now told I never had epilepsy).

Unfortunately my dr. took away my driving privilege immediately. Most states have a '6 month rule' - you have a seizure you loss your privilege to drive for 6 months following it. I never drove during the time and am very glad I didn't as I sometimes had warning, but then started to get no warning at all. She needs to be careful, as the chances of her hurting someone are VERY VERY high. The medication takes approximately 5 months to adjust to, then you regain 'normal function'. Its much better than going without as the longer you go without medication the better the chances of the seizures causing more electrical pathways in the brain thus causing larger, more dangerous seizures.

Please please please please please get help - your hurting yourself by not.

Jennifer
Arianna Frances

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>She does not want to go to a doctor because she is afraid of losing her driving priviledges.

My mother continued to try to drive through chemotherapy, which didn't even cause seizures, just some tiredness and confusion. She came to facing the wrong way on a highway with the car stopped and skid marks in front of her. She wasn't injured (fortunately) but it could have been a _lot_ worse.

I can understand not wanting to lose the ability to drive even temporarily, but it may be a matter of her safety and/or survival to not drive until after she sorts out this problem.

> She does get a short warning before a seizure comes on . . .

I'd hate to bet her life on always gettting 30 seconds warning. A doctor is going to be the best one to determine whether it's safe for her to continue driving.

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Roy you haven't mentioned service dogs on here and I just wondered if either of you knew anything about them...

I have a friend that has seizures (not epileptic, but I can't recall the name..:S). She has a dog that is trained to sense when she is about to seize; he licks her hand so she can sit down before it comes on. A dog may be a tremendous asset to Lany (sp? sorry)...I just know that my friend's dog is just invaluable to her.
~Jaye
Do not believe that possibly you can escape the reward of your action.

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In addition to locating a medical specialist, you should get yourself First Aid certified ASAP. Plaything needs to start doing things like cutting her food into smaller pieces to prevent choking and removing things around the house that would cause puncture injury if she fell upon them. I'd also investigate Social Security benefits too.

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This is Mrs. Chad.

First, Epilepsy and seizure disorders are two different things. I have a seizure disorder, I do not have epilepsy. I also am a doc, eye doc, but specialize in working with blind people, so know what it means to pull a drivers' license away from someone, and also know what it means to have a drivers' license taken away from me.

If she has already made the decision to not skydive because she feels that her seizures would make her unsafe to do so, what makes her think that driving is any safer to do while under the influence of seizures? At least temporarily, driving has to stop.

Every seizure she has damages her brain. Brain tissue can not be grown back or brought back to life once it is affected. Every seizure sets up certain neurological patterns, these patterns make it more likely for future seizures to occur, and for those seizures to become progressively worse. Bottom line is sooner or later you'll be with a vegetable, not the person you care for now. She won't be able to work at all, much less drive herself to get there. This may not happen tomorrow, or next month, but over months to years, this is what can occur when seizures are going on uncontrolled.

Most people who have seizures do have an 'aura' before hand that warns them, but during that aura, brain isn't quite firing on all thrusters normally either. Visual perception is off, judgement is off, even that is a dangerous time to drive. She will hurt/kill herself or someone else if she keeps driving like this.

Seizures can be controlled by meds, there are a ton of meds out there, different meds for different seizure types, different parts of the brain. She will have to see a neurologist, get an electroencephalograph done which is usually done sleep deprived. It's easy, you just lay there with wires pasted to your head and close your eyes and vege out for a while. No big deal. She'll have an MRI to rule out any tumor or aneurism or other problem that is linked to the seizure disorder (they did find a brain lesion/tumor/scar thing that may be related to mine... scary as hell to know there's something in my head and not know what it is, but better to keep an eye on it every so often than drop dead and never know there was a fixable problem).

After the workup, they'll give meds. Currently I'm on dilantin, but I'm switching over to a new one, Lamectil. I've also been on Carbatrol. They all work differently. All have different side effects. Mine have been virtually non existant, nothing I can't live with and better than having a seizure. I am switching because dilantin is teratogenic and I want kids someday. Lamectil isn't teratogenic.

She needs help and needs it now. Honestly, I think you would be just as much at fault if she hurts herself or someone else while driving or if she progressively gets worse because you don't get professional medical care for her. Call an ambulance or take her to the ER, don't have sex with someone who can't talk or has transient blindness. If you truly care about her, get her the help that she needs instead of trying to do this yourself, take this seriously.

Losing a license is a temporary pain in the ass. Losing yourself, your life, your brain, your health, that's permanent.

Jen Galbraith OD, MS


Sometimes you're the windshield, sometimes you're the bug.
Pelt Head #3

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I had a friend that found booze made them worse. If this continues, there is probably a good chance she will have to be alcohol free.



Alcohol will absolutely undo any good that anti-seizure meds do. My ex-roommate (now a policeman in Gwinnet, GA) had a few in the army and was put on meds. He continued to drink for a while even though he was warned against it (and continued to seize as a result), but never once seized since stopping drinking.

As to the "what happens if she seizes while driving" question, I can answer that one too. Unbelievably, I know two people who were killed when seizing drivers lost control of their vehicles and ran off the road and over helpless bystanders. This is a veryserious topic to me. One of my best friends was killed when an older driver in a full-grown Cadillac ran right through the fence of a construction site in Manhattan and smashed him between the car and the blade of a Cat bulldozer. The car was going so fast it broke the blade off the bulldozer.

Chuck

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Has she been diagnosed as epileptic?
If not, please keep in mind that all seizures are not caused by epilepsy. This could be something entirely different and she should see a qualified doctor or neurologist immediately.
What good trying to preserve driving privelages if doing so puts her life (and others) at risk?

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